Patient story: Alexis
During week 26 of her pregnancy, Alexis began having pain in her abdomen. After several hours of tests at Brigham and Women's Hospital she discovered that she had HELLP Syndrome (Hemolytic anemia, Elevated Liver enzymes, and Low Platelet count)-a very serious condition that affects liver function in the mother and can be harmful to both mother and child.
Alexis needed an emergency C-section. When her baby, Will, arrived he weighed only 1 pound, 9 ounces.
"I didn't really know about preemies, but I knew that having a baby this prematurely was not good," Will's father Billy remembers. "Luckily, we had a big support network."
The BWH nurses, surgeons, and exceptional staff were also there to help provide comfort to Billy and Alexis, who were worried, and lifesaving treatment to baby Will. After just a few months, baby Will was ready to go home. "He finally came home at 4 pounds, 12 ounces, so tiny and so wonderful and healthy," Alexis remembers.
With Will at home, Billy came up with an idea to have a fundraiser for cyclists to raise money for the hospitals that helped his son. In 2007, The Reilly's held the first Pedaling for Preemies event to show support for Brigham and Women's Hospital Neonatal Intensive Care Unit and Children's Hospital Boston. To date, Pedaling for Preemies has raised more than $220,000 supporting BWH and Children's Hospital to provide funds for neonatal care, education, and research. "We'll always be grateful that Will is here today," Alexis says. "This is how we give back."
If you are interested in Pedaling for Preemies, send an email to pedaling4preemies@gmail.com. Join the cause on Facebook!